The Families of Spinal Muscular Atrophy is a non-profit, 501(c)3 tax exempt organization. Funds are specifically directed to scientific, educational or literary purposes in keeping with a charitable organization. Today FSMA has 24 Chapters throughout the United States and over 55,000 members and supporters. They are a collaborative organization where families and friends and researchers are all working together towards the same goal.

FSMA sponsors the largest Annual International Research Conference devoted entirely to SMA research. Dedicated researchers gather from around the world to share results and exchange ideas, fostering a spirit of cooperation and moving us toward the goal of finding a treatment and cure sooner. At the same time as the research conference FSMA sponsors an Annual Conference for Families to learn about the status of SMA research, gain an understanding of the disease, share the latest in disease management techniques, and network with other families and medical professionals.

Families of Spinal Muscular Atrophy is dedicated to creating a treatment and cure by:

• Funding and advancing a comprehensive research program;
• Supporting SMA families through networking, information and services;
• Improving care for all SMA patients;
• Educating health professionals and the public about SMA;
• Enlisting government support for SMA
• Embracing all touched by SMA in a caring community.

Their vision is a world where Spinal Muscular Atrophy is treatable and curable.